In the spirit of the Parkinson's Question Bridge, I'd like to ask what you've found the most helpful--physically, emotionally, mentally and/or spiritually--in regards to various forms of support you've received from friends and family. What kind of support could you use more of from your people? Is there anything that you don't want to ask for, but would love to have folks offer to do for you?
*What’s the hardest part about all of this? Doing it alone.*
Jeff, I admire your honesty and vulnerability. If more people (men, looking at you) had the courage to go there, the world might look different.
My question: having lived such a rich, beautiful life...how do you stay in the present moment, in the face of PD?
It seems hardwired in our mindstream to think about some other era when life was "better". Especially tempting if it really was better and there's no logical sense to be made of our present circumstances. I do this, so I wonder about the view from the side of your mountain.. (this is just what I'd ask you in-person–you don't have to answer publicly).
Oakland continues to resonate with me, and I so enjoy learning about it through your writing. The Question Bridge sounds like an illuminating project, and it does make me wonder, just as you did, what I could ask, or be asked?
I was diagnosed with Parkinson's disease a year ago at the age of 67. For several months I had noticed tremors in my right hand and the shaking of my right foot when I was sitting. My normally beautiful cursive writing was now small, cramped printing. And I tended to lose my balance. The neurologist had me walk down the hall and said I didn't swing my right arm. I had never noticed! I was in denial for a while, as there is no history in my family of parents and five older siblings, but I had to accept I had classic symptoms. I was taking amantadine and carbidopa/levodopa and was about to start physical therapy to strengthen muscles. I used different supplements that didn't work, so last July, I tried the PD-5 protocol—the best decision ever! My tremors eased, my energy returned, and I sleep soundly. I feel like a new woman, and I can walk and exercise again. I got the PD-5 from www. limitlesshealthcenter. com
I lived in Oakland for many years--love it too. I met David Hockney at the Oakland Museum of Ca, back when he gave a spontaneous, unpublicized lecture on his photo collages. Hidden treasure.
all good Jeff, I enjoyed reading your stuff,and the material that was attached...
I did not know you ride your bike...daily? I ride as well, but I have an electric one . We could do a trial run some afternoon, if interested (I have lost nearly all my cycling compadres to age) so we could ride into Tilden Park, or sans hills , on the Bayshore in Berkeley, all flat. Let me know
Hi Leo, I know, it's amazing that you're still riding! I'd love to come up to tell them, but the problem is my bike is about 60 pounds and until I get a bike rack with the ramp and a hitch I ain't going nowhere. We could indeed meet someplace like the Bayshore, near Ceaser Chavez and go away up or down on that trail… let's talk about it when I return from Florida
In the spirit of the Parkinson's Question Bridge, I'd like to ask what you've found the most helpful--physically, emotionally, mentally and/or spiritually--in regards to various forms of support you've received from friends and family. What kind of support could you use more of from your people? Is there anything that you don't want to ask for, but would love to have folks offer to do for you?
That's a very interesting question, Jeyn, I'll answer it/them in an upcoming Substack.
Thanks for the shoutout of our film, Jeff - and for another powerful post.
*What’s the hardest part about all of this? Doing it alone.*
Jeff, I admire your honesty and vulnerability. If more people (men, looking at you) had the courage to go there, the world might look different.
My question: having lived such a rich, beautiful life...how do you stay in the present moment, in the face of PD?
It seems hardwired in our mindstream to think about some other era when life was "better". Especially tempting if it really was better and there's no logical sense to be made of our present circumstances. I do this, so I wonder about the view from the side of your mountain.. (this is just what I'd ask you in-person–you don't have to answer publicly).
Hi Kelsey, Thanks for this. Happy to answer "in-person," and/or in an upcoming Substack in which I answer some of the questions I've been sent.
Oakland continues to resonate with me, and I so enjoy learning about it through your writing. The Question Bridge sounds like an illuminating project, and it does make me wonder, just as you did, what I could ask, or be asked?
I was diagnosed with Parkinson's disease a year ago at the age of 67. For several months I had noticed tremors in my right hand and the shaking of my right foot when I was sitting. My normally beautiful cursive writing was now small, cramped printing. And I tended to lose my balance. The neurologist had me walk down the hall and said I didn't swing my right arm. I had never noticed! I was in denial for a while, as there is no history in my family of parents and five older siblings, but I had to accept I had classic symptoms. I was taking amantadine and carbidopa/levodopa and was about to start physical therapy to strengthen muscles. I used different supplements that didn't work, so last July, I tried the PD-5 protocol—the best decision ever! My tremors eased, my energy returned, and I sleep soundly. I feel like a new woman, and I can walk and exercise again. I got the PD-5 from www. limitlesshealthcenter. com
I lived in Oakland for many years--love it too. I met David Hockney at the Oakland Museum of Ca, back when he gave a spontaneous, unpublicized lecture on his photo collages. Hidden treasure.
Wow, lucky you!! I love his work.
all good Jeff, I enjoyed reading your stuff,and the material that was attached...
I did not know you ride your bike...daily? I ride as well, but I have an electric one . We could do a trial run some afternoon, if interested (I have lost nearly all my cycling compadres to age) so we could ride into Tilden Park, or sans hills , on the Bayshore in Berkeley, all flat. Let me know
best Leo
Hi Leo, I know, it's amazing that you're still riding! I'd love to come up to tell them, but the problem is my bike is about 60 pounds and until I get a bike rack with the ramp and a hitch I ain't going nowhere. We could indeed meet someplace like the Bayshore, near Ceaser Chavez and go away up or down on that trail… let's talk about it when I return from Florida